This is my story, and I would love to hear yours!

For this first blog post, I am going to tell my story about how I was first diagnosed with Multiple Sclerosis. I am going to make this short and sweet, considering this blog is not all about me, but about my viewers as well!

That morning, walking was difficult. I lived in New York City in a small apartment that was smaller than my current walk-in closet. As I opened my eyes from a restless night of sleep, I realized that the previous two days had not been a nightmare; this was reality as its worst.

The Emergency Room at NYU seems like a blur now; it was a foggy image of MRIs, blood tests, and doctors with no answers. After a week, I left feeling more confused than I was when I entered. I had no diagnosis and was simply told that the lesion on my brain and the dead brain cells in my spinal fluid was probably Clinically Isolated Syndrome (CIS). http://www.nationalmssociety.org/about-multiple-sclerosis/what-we-know-about-ms/diagnosing-ms/cis/index.aspx

After deciding that my life was too complicated to deal with on my own, I moved back to my hometown of Melbourne, Fla to live with my parents. Just as I was getting re-adjusted to the small town life, seven months later I woke up and realized my nightmare was happening again. My legs were weak and filled with a tingling sensation, and my arms felt as if they weighed two tons. As my mother drove me to the local neurologist, I knew he would not bring good news.

Another MRI was done, and I waited with my mother in the doctor’s office for the results. I knew that if he diagnosed me with something, I would be relieved. I had remembered the previous events in New York, and I knew deep down that it would happen again. Relief was all I could trust.

So, I got my wish. He said they found a new lesion on my brain, and that I had MS. As I heard the words, I was surprised when I wasn’t relieved. I actually wasn’t in the room at all, not mentally. I was in my ’95 Toyota Celica, cruising the town with my friends. I was laying on the beach in the sand, feeling the warm rays of the sun beat down on my skin. I was in my English class, listening to my poetic teacher read the beautiful words of Walt Whitman, wishing I could write like him. I was anywhere else, but I wasn’t there.

My story has a happy ending, even though the chapters of my life haven’t been completely written. I’ am currently on Rebif 44, and I am doing very well. I have only had one other relapse since I was diagnosed, but I am still considered to have Relapsing-Remitting MS. http://www.msactivesource.com/types-of-ms.xml?utm_campaign=Forms-Specific&utm_source=google&utm_medium=cpc&utm_content=RRMS&utm_term=relapsing-remitting%20ms

Everyday life is a struggle, and the systems vary as each day passes. Sometimes I feel too weak to get out of bed, and sometimes I feel incredible, but I will never take a single day for granted. MS is just something that happened to me, it is not who I am, and although it makes up a large part of my life, I do not regret that it happened to me. All I can do is take my experience and touch others in my life by spreading MS awareness.

I hope you all do the same, and remember that you are who you are because of what is inside, not because of life’s challenging obstacles.ImageImage

(From left to right) Photo from newstalkcleveland.com Subscribe to the MS Magazine – It’s free!
 Photo from http://stuffcouldalwaysbeworse.blogspot.com/2011/05/ms-magazine-momentum.html

I hope you view this post as a beacon of hope, and you walk away feeling satisfied, fulfilled and enlightened.

Please share your story with me, and anything else that inspires you.

Be Well,

-Brooke

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About writtenbybrooke

Hi, all! My name is Brooke, and I am currently a journalism student at the University of Florida. As a 22-year-old individual living with Multiple Sclerosis, I have learned that life experience comes from taking the most challenging obstacles in our lives and turning them into lessons. The purpose of this blog is to not only share my story with you, but to learn yours as well,whether you have MS, or know someone close to you with the illness. I also want to make this blog an oasis of hope for everyone who views it by posting life-changing quotes, inspiring research, interviews from MS survivors, and overall good news for everyone. So I hope you enjoy, and always be well. -Brooke
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2 Responses to This is my story, and I would love to hear yours!

  1. Jennifer says:

    Beautiful words Brooke. Your an amazing lady. Always best wishes for you! Life really does throw some hardships at us but God must know we can handle them.

  2. Chelsea says:

    WOW Brooke! I am so proud of you for publicly sharing your story. You are a true inspiration to me and I am proud to call you my best friend. There is no doubt in my mind that your words will, at the very least, educate the public about MS – along with giving others hope, enlightenment, and courage! Keep up the great work 🙂

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